Thursday, October 19, 2006

To Write or Not to Write

A while ago you may or may not remember that I posted a letter to all those who don't have RSD. I talk a lot about what I might say to people with RSD, but the truth is, I never wrote a letter to them. The letter I posted on this site a while back is not written by me. I just like it a lot and think that it tells the tale of RSD and how to deal with RSDers really well. Still, people keep telling me that should write a letter of my own.

I've tried to write it, but either one of two things happen: either I copy the sections to have from someone elses letter, or I begin to become sinical and write all sorts of nasty things in the letter that is meant to go on my website as a way to help people understand the disease.

Sigh...I really should write the letter. I just don't know how to do it. I've never been in the shoes of someone who met someone with RSD. Maybe there is someone out there who met a person with RSD and dismissed them and then one day, surprise, they have RSD too. I would like to have that person's perspective on the whole thing. Ha, there are some people that in my meanist moments I do wish they would get it. I mean, after N. told me that it's all in my head, I couldn't stop wishing it, as hard as I tried to say "well, just for one day..." I wasn't telling the truth. The truth is that I have wished endless RSD on that girl many times. Maybe that's how I should write it. I should write it as if I were answering the questions of someone who honestly doesn't believe in the disease, thinks I'm a druggie for taking all these medications, thinks that it's all in my head, etc, etc...

Yea, I have to write this letter. If at least for my own sake.

No comments: